Welcome to Insulinoma UK

This is a new informational website created to support all of those diagnosed with an insulinoma. The overall aim of the site is to create an insulinoma community  and  to provide up to date, easily accessible information. To date, most of the information on insulinomas is grouped with other rare neuroendocrine tumours. This site will provide a unique platform by bringing together  information on this condition. We recognise that because of the rare instance of insulinomas many visitors to the site will not be from the UK. Everyone, wherever you are from, are welcome to share your views and experience of living with an insulinoma. The more we share the more we learn.

What are insulinomas?

Insulinomas are a rare type of functional neuroendocrine tumour usually found in the pancreas. They are called functional because they produce insulin and cause blood sugar levels to drop, quite often dramatically and in 'episodes.' Even the smallest tumours can cause symptoms connected to hypoglycemia (the medical term for low blood glucose levels). The vast majority are benign (with no spread beyond the pancreas). However, 10% are malignant and by the time of diagnosis will have spread elsewhere in the body, usually the liver. The tumours are generally diagnosed in middle age and slightly more women are affected. If an insulinoma is suspected you may also be screened for a genetic condition called MEN1. What are the symptoms? How are insulinomas diagnosed? What tests are available? How can insulinomas be treated? How can I manage my hypos?

Copyright and Content: Content on this site has been sourced from the NET Patient Foundation that supports people diagnosed with neuroendocrine tumours and their families. For further information visit : www.netpatientfoundation.com

TERMS AND CONDITIONS