Putting the Insulinoma community at the heart of everything we do.
Founded by a patient for everyone affected by insulinoma, we are a 100% volunteer led organisation providing trusted information, shared lived experience, peer support, advocacy and research.
Supporting, connecting and empowering the insulinoma
community
YOUR SYMPTOMS
What to look for and what to ask your doctor.
Your insulinoma journey
Information to guide and support you.
DIAGNOSIS
The tests & investigations used to confirm Insulinoma.
TREATMENT
Understanding treatment options & what to expect.
SURGERY
Surgery for an insulinoma
HYPOGLYCAEMIA
Tips to help manage low blood sugar.
Our Insulinoma Support Groups
We have a number of dedicated Facebook support groups for different support needs – tailored to your own situation and diagnosis.
DIAGNOSED
If your insulinoma has been biochemically diagnosed (by blood tests) …
INSULINOMATOSIS OR NIPHS
Insulinomatosis or noninsulinoma pacreatogenous hypoglycaemia (NIPHS) …
BEREAVEMENT
If you have lost a loved one to Insulinoma …
METASTATIC
If you have been diagnosed with a malignant insulinoma …
SUSPECTED
If your insulinoma is suspected and you are awaiting a diagnosis …
Real stories.
Insulinoma patients share their own journeys.
Useful resources
Discover our downloadable handy guides, factsheets and checklists.
Latest news
Stay up to date with our news & events.
Get connected
Join our Facebook support group to chat to other Insulinoma patients.
Latest news & updates
Charity Skydive in memory of Callum Lynch
Help us make a difference
Your support helps provide support and raise awareness.