Meeting, sharing and looking ahead

The Insulinoma (Pilot) Retreat takes place at Alward House, Wiltshire, from 9 to 11 October 2026. This residential gathering is for adults who have had surgery for an insulinoma and their carers or supporters.

For many people, meeting someone else with an insulinoma is something they have never experienced. The pilot will offer time and space for round table conversations, shared experiences and connection.

Looking ahead to Birmingham 2027

What we learn from the pilot will help shape the Birmingham UK 2027 Twentieth Anniversary Insulinoma Retreat. We welcome interest from people affected by an insulinoma, carers, families, clinicians, researchers, charities, volunteers and potential sponsors.

The form records an expression of interest, not a confirmed booking.

Specialist knowledge and lived experience

The following contributors are supporting the Pilot Retreat programme on 10 October 2026.

• Understanding insulinoma today — Trusted specialist information, including a Patron welcome from Professor Martyn Caplin, BSc (Hons), DM, FRCP, Professor of Gastroenterology and GI Neuroendocrinology at the Royal Free Hospital and University College London.
• Diagnosis, imaging and follow up — Associate Professor Hans Hofland, MD, PhD.
• Insulinoma endocrinology and medical treatment pathways — Dr Efthimia Karra, PhD, MRCP.
• Pancreatic surgery for an insulinoma — Mr Tom Armstrong.
• Nutrition and managing blood glucose — James Wimbury.
• Research Project update and Living with insulinoma plenary — Professors Annie Turner and Meghann Lloyd.
• Psychological support and coping — RareMinds.
• upLIFT study company update — A factual, non-promotional update from Rezolute representatives Dana Jastrow and Nara Jaquette.

Naomi Piner, BACP Accredited counsellor, will facilitate the Carers and Supporters Programme.

Andrew Davis will also share a short contribution, ‘Remembering Paula: a family perspective’.

Our Founding Partner

We thank Rezolute, ICUK’s Founding Partner for the 2026 and 2027 retreat programme. The agreed £25,000 funding has been received.

In loving memory of Paula Davis

We remember Paula Davis, a founding Trustee and Secretary of Insulinoma Charity UK, who died from a malignant insulinoma on 14 February 2026.

Paula was the first person Enola met face to face who was also living with an insulinoma. Their friendship spanned 18 years, through which they supported one another through the challenges of the condition.

A dear friend and an advocate for the insulinoma community, Paula helped establish and support the charity. We remember her with love and gratitude.

Andrew continues the family’s commitment

Paula’s brother, Andrew Davis, stepped in to succeed her as Trustee and Secretary in February 2026. We are grateful to Andrew for taking on these responsibilities and continuing his family’s support for the insulinoma community.

Fundraising: thank you

Thank you to everyone who has taken on a challenge, organised an event, sponsored a fundraiser or made a donation. We are grateful for every contribution and for the care behind it.

Photo from ICUK’s public thank you to Stefan.

Stefan, you did it

Stefan King completed the 43 km South Coast Ultra Challenge in 6 hours and 27 minutes in memory of Callum Lynch. ICUK’s update on 11 September recorded £1,100 raised, more than twice his original £500 target. Thank you, Stefan, and everyone who supported him.

Taking the leap for Callum

£1,865

Sandra Lynch, Sophie Mercer and Chris Cosgrove took to the skies over Old Sarum, Salisbury, on 15 August 2026, jumping from 10,000 and 15,000 feet in memory of Callum Lynch. ICUK’s published thank you recorded £1,865 raised. Our thanks to all three and to everyone who donated.

The Three Marines, Portsmouth

Thank you to the team and customers for £129.86: £50 towards the skydive in Callum’s memory and £79.86 from the charity pots on the bar. We appreciate your continued support.

Remembering Catherine Botes-Russell

Our thanks to Barry Russell for choosing Insulinoma Charity UK for donations in memory of his wife, Catherine Botes-Russell, in place of funeral flowers. We remember Catherine with warmth and extend our gratitude to Barry, their family and friends.

More fundraising to celebrate

Campaign totals recorded in ICUK’s 2025–26 annual report

These are published campaign figures and recorded contributions, not live totals or a combined accounting total.

Enola Wright BEM

Founder and Chair of Insulinoma Charity UK

Recognition for service

Enola was awarded the British Empire Medal in The King’s Birthday Honours 2026 for services to the insulinoma community. She founded the Insulinoma Support Network in 2007, following her own diagnosis, and established Insulinoma Charity UK in 2023.

Bringing lived experience to NICE

Enola has served as an Insulinoma Patient Expert for the National Institute for Health and Care Excellence (NICE), bringing lived experience to national healthcare decision making. She undertakes this role in her individual capacity.

Making specialist information accessible

Enola is working in collaboration with UKINETS to produce a patient friendly Nutritional Management of Insulinomas guide. This work aims to make specialist guidance easier for patients and families to understand. The patient guide is in development.

Supporting and connecting our community

Alongside delivering the October pilot retreat, Enola continues to support people affected by an insulinoma and build relationships with clinicians, researchers, patient organisations and supporters. Connecting people with shared experiences remains central to her work.

Read the BEM announcement